this and that....
Today was a pool day for us, I'm beginning to think we live at the pool more then the beach lately. It was a great time, just me and the boys none of their friends, none of mine. We played in the pool for 2 hours chasing, dunking and laughing. It was such a great time knowing that those times are about to shrink with Micah. So I'm holding on to the time as much as possible right now when Mom is still ok to be around.
Tomorrow will be Micah's G tube surgery, we are having it moved lower and low profile button put in. He will be in for the next few days but guess what? Keith is here this time =). He is going to take the major time with him and I don't feel bad at all =). Micah is so excited to have a button that doesn't stick out and more of the CF he can hide from. He has this perception that if someone finds out he has CF at his middle school that they will say he has a contagious disease and no one will want to be around him. BOY this is a big change from my little man who could careless who saw his button or knew he had CF.
I guess we are in that next stage of CF, the teenage stage where resistance starts and pier pressure to be normal. I knew this time was coming but it seemed to come so quick, and now I'm trying to hold it back.
OH there was a miracle today in the our home, Elijah my autistic son who has always been behind in school running at a 1st grade level. Got his State testing scores back today.. He is at the 4th grade level in math!!! Ranging right at the normal range for his age. My mouth dropped open and started crying. My little man who seemed to be behind the 8 ball always has seemed to finially get it and catching up at least in math. There is a light at the end of the tunnel of the chance of him being mainstreamed into a regular class and even college. WOW!! something we never dreamed of for him. Thats my little man. =)
Well thats about it for us today, living and loving life.
Tomorrow will be Micah's G tube surgery, we are having it moved lower and low profile button put in. He will be in for the next few days but guess what? Keith is here this time =). He is going to take the major time with him and I don't feel bad at all =). Micah is so excited to have a button that doesn't stick out and more of the CF he can hide from. He has this perception that if someone finds out he has CF at his middle school that they will say he has a contagious disease and no one will want to be around him. BOY this is a big change from my little man who could careless who saw his button or knew he had CF.
I guess we are in that next stage of CF, the teenage stage where resistance starts and pier pressure to be normal. I knew this time was coming but it seemed to come so quick, and now I'm trying to hold it back.
OH there was a miracle today in the our home, Elijah my autistic son who has always been behind in school running at a 1st grade level. Got his State testing scores back today.. He is at the 4th grade level in math!!! Ranging right at the normal range for his age. My mouth dropped open and started crying. My little man who seemed to be behind the 8 ball always has seemed to finially get it and catching up at least in math. There is a light at the end of the tunnel of the chance of him being mainstreamed into a regular class and even college. WOW!! something we never dreamed of for him. Thats my little man. =)
Well thats about it for us today, living and loving life.
Comments
Ah the teen years. I don't envy you one bit. LOL I hear it's better with boys than with girls.